Community
To connect with the DIPG community on facebook:
Support: DIPG Awareness for Family and Friends
Treatment/Research information sharing: DIPG Research
Advocacy: DIPG Advocacy Group
The Cure Starts Now –don’t reinvent the wheel–find a chapter near you. With singular focus, they continue to fund critical research, support families, and bring us all closer to a cure for DIPG.
ChadTough Defeat DIPG Foundation; research, support, events, and now the NURSE NAVIGATOR for DIPG patients and their families.
Pediatric Brain Tumor Foundation, community support, clinical trials, research
NATIONAL BRAIN TUMOR SOCIETY
Leading the way in pediatric brain cancer research funding and innovative clinical trials, https://braintumor.org
The Coalition Against Childhood Cancer is a network of childhood cancer organizations nationwide providing a support network addressing the needs of children with cancer and their families.
Clinical Trials and Expert References
Bexion Pharmaceuticals has exciting innovations and a caring, accommodating staff:
PNOC Clinical Trials for DIPG: https://pnoc.us/clinical-trials/
CBTN Member Institutions: https://cbtn.org/institutions
Dr. Michelle Monje’s laboratory: https://med.stanford.edu/monje-lab.html
Lorry I. Lokey Stem Cell Research Building
265 Campus Drive, Room G3035
Stanford, CA 94305
650-724-5824
Email: mmonje (at) stanford.edu